Firstly I would just like to apologise for not being around at all lately, things have been pretty hectic and I will explain but as from today I will now be back online and will be keeping my blog up to date and hopefully have a lot of new and exciting things to come!!
I was admitted into hospital on the 8th June 2015 (earlier this month) with severe lower back pain that had been present for several days but had been getting worse over the previous weekend and had resulted in me loosing function in my right leg intermittently and pain in my left hip. I had called my GP first thing that Monday morning and he called for an ambulance to have me admitted for pain management and investigations.
I went through the normal procedure, waited for the ambulance, which surprisingly was here within 30 minutes and they took me to the a&e department, once there they did there usual bits and then put me on the emergency assessment unit where a team attempted to keep on top of my pain over night. I didn't manage to get any sleep and it was a very uncomfortable night :(.
Tuesday morning I saw a doctor who had no idea what eds was (surprise suprise) and she decided she was admitting me to a ward for further investigations. Later that day I was moved to ward 36. My mum came and brought me some fresh pjs and some things to keep me occupied which I was very grateful of :)!
Unfortunately I started to feel more and more ill the longer I was in hospital which is usually the case and I don't really remember what happened on the Wednesday but apparently not much.
Thursday morning I was taken down for a MRI scan of my back and then I sneaked out for a cigarette (very naughty of me) I really needed to get out of the stuffy place for a little while, but whilst I was outside I started to feel really dizzy and started being sick. A lovely lady saw me and fetched a wheelchair and took me back to my ward and I passed out on the way, I was in and out of conciousness for the rest of the day but the nurses didn't seem to worry about it... My mum on the other hand was really concerned when she came to visit and I couldn't even open my eyes or string a sentence together without passing out.
Friday morning two Dr's came to see me to explain that the MRI shows that I have degenerative disk disease of my lower back, this is incurable and will possibly need surgery in the future. I was aloud to go home later that day. 12th June 2015
Over the weekend I was absolutely exhausted and out of sorts as they had also changed my medication from Zomorph to Oxycodone longtech and shortech to see if it would help with the pain.
Come Wednesday 17th June 2015 I was rushed back into hospital as my hip was dislocated and fully rotated due to my illiotibial band being very loose :( it was so painful but luckily enough I was only there over night and was home early hours the next morning.
But just my luck I ended up back in hospital again on Friday 19th June 2015 because I took a funny turn after taking my medication and was in and out of conciousness and they made me stay in overnight.
Since then, I haven't had anymore 'bad' EDS luck but I won't hold my breath... I guess it's just something we have to just get on with. I won't ever let it beat me that's for sure!
I had my abdominal ultrasound scan on Saturday morning so that should conclude all of the gastro investigations now and we should hopefully have some results soon :)!
This morning I saw my orthopaedic surgeon about my knees and he has suggest doing medial reefing and lateral release on my left knee, which is the same surgery I had done to my right knee, he feels that there will be a better outcome as the knee is stronger to start off with than what the right one was but he can't make any definite promises. I have asked for some time to think about what I would like to do before making a decision so I am going back in 3 months time.
That is basically what has been happening and why I haven't been online or able to post... I hope you are all as well as possible and I will be back very shortly with a blog about what Degenerative Disk Disease is, How it affects us, Treatmeants and Prognosis. Thankyou for taking the time to read xx
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