Last weekend I was really struggling with the pain in my knees and shins and come Monday morning I could no longer cope! The pain was so intense I could not stop crying and I just could not function.
I called my GP Monday morning and explained that my knees keep subluxing and the pain is getting unbearable, there was a lot of pressure in my knees too! I had taken Zomorph, Oramorph along with all my other pain medications but it didn't seem to be making any difference.
My GP was very concerned and advised me that he was calling an ambulance to transport me to hospital and they would be with me within two hours.
I went to Queens Medical Centre instead of my usual hospital of Kingsmill Treatment Centre. It seemed like I was waiting forever to see a Dr but when I did I couldn't of asked to have seen anyone better.
The Dr had a nurse put a canula in my arm (which wasn't fun as my veins seem to move all over the place) and they have me some IV morphine. The Dr explained that there wasn't much else pain relief wise that they could administer as I had already taken a lot and have tried a lot of previous medications that do not have any effect. She asked me if I was keen to get home and I said yes of course, but told me to be prepared to stay in hospital.
She knew what Ehlers-Danlos was but wasn't experienced with dealing with people with our condition so she went to consult with her senior. When she came back she said that they have decided that it would be better to admit me to hospital so they can try and get on top of the pain before letting me go home.
I hadn't eaten all day so when I got on the ward they made me some toast and brought me some biscuits and someone went up to costa coffee and the shop for me :)
I had a latte as it is my favourite and got myself one of their flask things as they seal really well and can be carried around without spilling it. I also got a giant Sudoku book which I really enjoyed doing as it helped take my mind off of the pain a little.
The staff on the ward were great. I couldn't sleep all night due to the pain, my blood pressure dropped really low so they kept coming in to check it every hour and try put me on a IV paracetamol drip and then gave me some fluids. At around 2am the pain started to get really intense again so they called the Dr down to check on me and administer some more pain relief.
Around 7am Tuesday morning I had just managed to fall asleep when the doctors came to do their rounds. I was sent for an X-ray which came back ok and my bloods didn't show a huge increase in inflammatory markers but they decided they wanted to keep me in for another night.
I was eventually allowed to go home but I didn't feel like I was any wiser for being in hospital, my medication has stayed the same and I was still in a lot of pain but i was just soo glad to be home. I literally spent most of Wednesday just catching up on sleep.
On Thursday I was supposed to have hydrotherapy which I have every week but I really didn't feel able physically to leave the house so I didn't go and spent the day relaxing. I decided to do some crochet.
I have never made anything before but my mum has been looking for a phone case for her new phone, she loves owl and her favourite colour is pink! So this is what I made her:
I love it and it is soo pretty <3
Friday, yesterday, I was feeling a little bit better. I went to my physio appointment at KMH. It went pretty well but I'm not able to do a lot of physio due to my knees and left hip dislocating so frequently. I am unable to hold my right foot up and have a lot of muscle loss. When I got back from the hospital we decided to go to Skegness.
I haven't been out for the day for a while and I really enjoyed it even though we were only there for a couple of hours. We went to the beach and then had some dinner and come home. By the time I got home I was absolutely exhausted and went straight to bed.
Today I am in a lot of pain again but it was definitely worth it yesterday to get out of the house for a bit. I shall be spending the rest of the day relaxing :)
Now I am home and feeling a little better I will be able to keep up to date with posting. You will hear from me shortly! Xxx
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